privacy policy

Last Updated: July 31, 2026

1. Introduction

The Multiple Chemical Sensitivity Survival Foundation respects your privacy and is committed to protecting the personal information you provide through our website.

This Privacy Policy explains what information we may collect, why we collect it, how we use it, when it may be shared, and the choices and rights available to you.

By using this website, contacting us, making a donation, downloading a resource, submitting a questionnaire, volunteering, applying for assistance, or joining a Foundation program, you acknowledge the practices described in this policy.

2. Contact Information

Multiple Chemical Sensitivity Survival Foundation

848 Edgehill Road

Burleson, Texas 76028

United States

Phone: +1 817-723-6192

Email: MCSurvivalFoundation@gmail.com

3. Information We May Collect

We may collect information that you voluntarily provide, including:

Name

Email address

Telephone number

Mailing or billing address

Donation and transaction information

Membership information

Volunteer or board applications

Messages submitted through contact forms

Requests for support or assistance

Questionnaire responses

Information about chemical sensitivities, symptoms, functional limitations, housing needs, or requested accommodations

Documents you voluntarily submit for program eligibility or verification

We may also automatically collect limited technical information, including:

Internet Protocol address

Browser and device type

Pages visited

Date and time of access

Referring website

Approximate location

Cookie and analytics information

We seek to collect only information reasonably necessary for the purpose explained when it is requested.

4. Health and Sensitive Information

Some Foundation resources and programs may allow people to provide information about Multiple Chemical Sensitivity, disability, symptoms, medical limitations, housing conditions, or support needs.

This information may be sensitive. We use it only for purposes such as:

Providing questionnaire results

Responding to requests for assistance

Determining preliminary program eligibility

Helping people locate appropriate resources

Reviewing accommodation or accessibility needs

Communicating with the person about their request

The Foundation’s questionnaires and educational tools do not diagnose any medical condition and do not replace evaluation by a qualified healthcare professional.

Please do not send complete medical records, identification documents, banking information, or other highly sensitive materials unless the Foundation specifically requests them through an appropriate process.

5. How We Use Information

We may use personal information to:

Operate and improve the website

Respond to messages and inquiries

Process donations and provide receipts

Deliver digital resources

Administer supporting memberships

Review volunteer, board, or committee applications

Review requests for assistance

Verify eligibility for Foundation programs

Communicate about Foundation activities

Send newsletters or updates when consent has been provided

Maintain financial and organizational records

Prevent fraud, misuse, or security threats

Meet legal, accounting, tax, and regulatory requirements

Protect the Foundation, its community, and its users

We will not use personal information for a materially different purpose without appropriate notice or consent where required.

6. Donations and Payments

Donations and purchases may be processed through independent payment providers.

Those providers may collect:

Name

Email address

Billing address

Card or payment-account details

Transaction information

The Foundation generally does not directly receive or store complete credit-card numbers or security codes.

We may receive limited transaction information, including the donor’s name, email address, amount donated, date, payment status, and transaction identification number.

Payment providers operate under their own privacy and security policies.

7. Digital Downloads and Questionnaires

When you obtain a digital guide, questionnaire, comic, song, or other resource, we may collect information necessary to:

Complete the transaction

Provide access to the resource

Send a download link or confirmation

Maintain donation and transaction records

Provide technical support

Questionnaire responses are intended for educational and pre-screening purposes. They are not medical diagnoses, medical records created by a healthcare provider, or substitutes for professional care.

8. Requests for Assistance

People seeking Foundation assistance may be asked to provide information about:

MCS diagnosis or professional documentation

Severity and functional limitations

Housing or environmental conditions

Financial circumstances

Requested items or services

Other sources of assistance

Relevant supporting documents

Information may be reviewed by authorized Foundation administrators, board members, or Assistance Review Committee members.

Submitting an application does not guarantee approval, funding, housing, transportation, treatment, or any other service.

9. When Information May Be Shared

We do not sell or rent personal information.

We may share limited information with:

Website and hosting providers

Online-store providers

Payment processors

Email and newsletter providers

Form, storage, and technology providers

Accountants, lawyers, or professional advisers

Authorized board members or review committees

Organizations helping deliver an approved service

Government or law-enforcement authorities when legally required

Other parties when reasonably necessary to prevent fraud, abuse, harm, or security threats

Service providers should receive only the information reasonably necessary to perform their work.

10. Public Groups, Comments, and Patient Stories

The Foundation may operate public social-media pages, public groups, comment areas, and other public community spaces.

Information posted publicly may be viewed, copied, shared, or stored by other people. Do not publicly post:

Medical records

Identification documents

Home addresses

Banking information

Private telephone numbers

Information you do not want publicly distributed

The Foundation will seek permission before intentionally publishing an identifiable patient story, photograph, video, testimonial, or medical information in official Foundation materials.

11. Cookies and Analytics

The website and its service providers may use cookies and similar technology to:

Keep the website functioning

Remember visitor preferences

Process shopping-cart activity

Measure website traffic

Improve performance

Prevent fraud and misuse

Support embedded videos, social media, or payment services

Visitors may be able to manage cookies through their browser or a cookie-consent tool.

Where European privacy law applies, nonessential cookies should be offered through an appropriate consent choice. Organizations processing EU personal information must clearly explain their purposes, collect only necessary data, protect it, and avoid keeping it longer than needed.

12. Email Communications

We may send administrative emails relating to:

Donations

Digital downloads

Applications

Assistance requests

Memberships

Volunteer activities

Security matters

Policy changes

Messages you send to us

Newsletters, fundraising messages, and promotional updates may be sent when legally permitted and when appropriate consent has been obtained.

You may unsubscribe from promotional communications using the unsubscribe option in the message or by contacting:

MCSurvivalFoundation@gmail.com

You may still receive necessary transaction or service-related messages.

13. Data Retention

We retain personal information only for as long as reasonably necessary for the purpose for which it was collected and to satisfy legal, financial, safeguarding, fraud-prevention, and reporting obligations.

For example:

General inquiries may be removed after they are resolved.

Newsletter information may be retained until you unsubscribe.

Donation and financial records may be retained as required for accounting and tax purposes.

Assistance records may be retained long enough to document eligibility, review decisions, payments, and accountability.

Sensitive health information should be removed when it is no longer reasonably needed for the relevant program.

European privacy principles require data minimization and storage limitation rather than indefinite collection or retention.

14. Data Security

We use reasonable administrative, technical, and organizational measures intended to protect personal information from:

Unauthorized access

Misuse

Accidental loss

Alteration

Disclosure

Destruction

No website, email service, payment system, or electronic-storage method can be guaranteed completely secure.

Do not submit highly sensitive information through ordinary email unless specifically requested and an appropriate method has been provided.

15. International Visitors

The Foundation is based in Texas, United States.

Information submitted from another country may be transferred to and processed in the United States or in other countries where service providers operate.

Where the General Data Protection Regulation applies, the Foundation will seek to rely on an appropriate legal basis, such as:

Consent

Fulfilling a request or transaction

Compliance with a legal obligation

Legitimate organizational interests

Explicit consent for sensitive health information where required

Privacy notices for EU individuals should explain the organization’s identity, purposes, legal basis, retention period, recipients, international transfers, and available privacy rights.

16. Your Privacy Rights

Depending on where you live, you may have the right to request:

Access to personal information held about you

Correction of inaccurate information

Deletion of certain information

Restriction of certain processing

Objection to certain processing

A portable copy of information

Withdrawal of consent

Removal from promotional communications

Information about how your data is used or shared

To submit a request, contact:

MCSurvivalFoundation@gmail.com

We may need to verify your identity before completing a request.

Individuals in the European Economic Area may also have the right to complain to their national data-protection authority.

17. Children’s Privacy

The website is intended for a general audience and is not specifically directed to children under 13.

We do not knowingly collect personal information directly from children under 13 without appropriate authorization from a parent or legal guardian.

Applications or assistance requests involving minors should be submitted by a parent, guardian, or authorized representative.

18. External Websites and Services

Our website may contain links to or embedded content from:

Payment providers

Social-media platforms

Video or music services

Online stores

Flipbook or document services

Healthcare providers

News organizations

Partner organizations

The Foundation does not control the privacy, security, availability, or content practices of those independent services. Review their policies before submitting personal information.

19. No Sale of Personal Information

The Multiple Chemical Sensitivity Survival Foundation does not sell personal information.

We do not exchange donor details, medical information, contact information, questionnaire responses, or assistance applications for money.

20. Changes to This Privacy Policy

We may update this Privacy Policy when our website, programs, service providers, or legal responsibilities change.

The revised policy will be posted with a new “Last Updated” date. Material changes may also be announced through the website or by email when appropriate.